Although, I have to admit, going home was almost as frightening as going into the hospital, I am SO happy to be home and have my freedom, my surroundings, bed, food and husband, back. I have been healing and getting stronger every day, rash is gone…that’s a miracle!! No more fevers or any other of the problems I went in for, or got, while I was there.
I do wish this had happened at a different time. Alexia, Trevor & Isabella did not get to share with us, the stay-cation we had all envisioned. They were, however, most supportive and more than good sports about having to drive an hour to Moffitt every day where none of us could enjoy Trevor fishing or Bella running around on the beach collecting shells and making castles. I am very in awe of their sweetness & dedication, and help making me feel better, getting things and food to me and just being the best medicine there could have been during that time.
This past Monday I had my normally scheduled appointment with Dr. Tomblyn at Moffitt (I went without my suitcase and made sure to have my precious yoga class). She was very pleased, as are we, that I was doing so well and was anxious to share my blood work results of that day. My white counts had gone from .39 on the 30th to .69 on the 3rd by themselves, as they cannot be transfused. My hemoglobin was holding and so were my platelets. My albumin took a big leap as well (hospital food vs. home cooking) so my nutrition is also on the rise. Due to these results, my doctor told Jaime could stop administering IV antibiotics around the clock and I may or may not need another round of Vidaza (chemotherapy). Also, that it may have been too soon for that frightful biopsy.
Tomorrow, Thursday, I will go to Dr. Chu’s office for my scheduled blood work and hope to see rising numbers. My take is that there was a war waged last week. My donor’s cells became strong enough, after being off all the immune suppressing medications, to fight the Leukemia cells. Sunday I felt peace in my body and I’ve been feeling stronger ever since. Today I even power walked to my normal tunes!
Exceptional Thanks, to my husband who doesn’t leave my side until he knows I’m safe and who cares for me no matter what the circumstances are, and they have not been pretty. And to all who have kept in touch, visited, listened & loved. Thank you.
I look forward to cousin David arriving Sunday for a few days from Seattle followed by Freddie coming from Cape Cod for a whole week after that!
Carol
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Very Sweet. We loved spending time with you. Even if it was in the same room over and over.So glad you are feeling better. Hopefully tomorrow will bring some good numbers.
ReplyDeleteHI Cous, I was wondering why you had not returned my email for a lunch invite. I have been looking for your blog and since I did not see it I hopefully assumed you were out on the water and Jamie was busy playing tennis. I am sorry to hear the news of late, but I know you are so strong and have so much love and support around you to keep you upbeat and strong to continue your battle. We love you toooo, and I will stay in touch. hugs, Arlene and Paul
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