Thursday, March 31, 2011


Good afternoon everyone, Sorry it has again taken so long for an update, but as I'm sure you all know life gets busy and then there are those times that just take unplanned routes and you have to go with it.


Since my lymphocyte infussion on March 10th, I really can't say that there has been much physical change as of yet. It still may be early. I had hoped that the fact that my last transfusion of red cells which lasted three weeks was a good sign since I just had to be transfused this past Monday with one unit of red and one of platelets.


I went to Dr. Chu's office today instead of Moffitt due to some very good weather advise from my friend, Jeri. I had my blood draw and PA appointments here in Sarasota so as not to chance the wicked weather and traffic risks. I'm not quite as bouncy this afternoon as I was this morning during my power walk with Daniel, my reds are down to 8.5 today and I'm scheduled to be at SMH Day Treatment Center for 2 units of red tomorrow. So it's a bit of a downer and I'm a bit discouraged, but here I go again. If you think this story is getting monotonous, I agree. This is the only way to keep me up and running until something more positive happens with the lymphocytes.


This coming Monday I'll be up at Moffitt again, starting with a Bone Marrow Biopsy and the usual blood draws and doctor or PA appointments as well as a visit to Dr. Greene who oversees my need for daily IV antibiotics which Jaime and Daniel have been administering morning and night. As soon as there is enough information from Monday's biopsy, Dr. Tomblyn will determine if it will be beneficial to infuse a second and larger dose of my donor's lymphocytes which were divided and frozen on March 9th upon arrival.


I have been walking 3 to 4 miles almost daily, depending on the pain in my hips, knees and legs, either with my Dad and/or Daniel, and many of you sweet friends as well. I've also kept myself quite busy with some fun art projects, reading, cooking and the usual daily chores. Taking care of myself has been quite a chore for me, Jaime & Daniel. I am grateful for all they are and to all of you and the enormous amount of support from all who have touched my life during this long year...and counting.


Thank you all for keeping me near and for being such wonderful spiritual boosters.

3 comments:

  1. Carol--Here's hoping both the weather and your health get a boost in the days to come! Lonnie and I think of you daily. Take care!--Lyn

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  2. Hi Carol, It was so good to check into the blog and see you writing to all of us. I am not surprised when I hear about all of your energy rebounds and all that walking. Keep that body moving sweetie. Enjoy the sunshine and the beach and water. Paul and I have been passing a really bad cold back and forth, so I will send our love hugs and kisses thru this message and stay far far away. love you, Arlene and Paul

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  3. I hope things are going well for you. The "kids" are still winning races with "Our Raptor". I have been saying many prayrs for you while I'm out on the water. I am hoping that we can row together again soon. Cheers!!
    Chris The Boat Man

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