Brief update

Hi everyone and sorry for not posting updates to the blog as often as I would like to.

Carol is continuing with her regimen of multiple medications and doctor visits every Monday and Thursday. Mondays are always in Tampa but Thursdays are sometimes at our local doctor.

Her biweekly lab work determines the need for transfusions of either blood or platelets. In most cases she needs one of them, and occasionally both.

One thing that has been very difficult to manage is the pain on the lower part of her legs. For the past few weeks even with some strong medication, it’s been very difficult to control an acute bone pain that stretches from her knees to her toes, making it a challenge for her to take her walks or function normally when it’s even painful to be standing.

Dr. Tomblyn says that these are probably manifestations of the GVHD activity (fight) between the donor’s cells and her own. Some of the medications that could stop the leg pain could interfere with the donor's cells progress, so Carol is having to take meds that will not cause any issues against these very valuable donor cells.

Another bone morrow biopsy is scheduled for May 16^th. Where we hope the results to show an increase of the donor cell counts, which will explain why there is so much pain in her legs.

Will keep updating you.

Thank you.

Jaime